Home Sweet Home

So...it finally happened!! After 10 days out of ICU, Hudson braved another bronchoscopy and mommy and daddy brought their sweet baby boy home! He completly weaned off oxygen and narcotics and came home with only a feeding tube, pulse oximetry(measures his blood oxygen saturation)and minimal meds(aspirin and prevacid). The bronchoscopy revealed more scar tissue (ENT surgeon debrided once again)...but overall looked much improved. Since coming home he has been taking more from the bottle each and every day and getting regular breathing treatments to hopefully continue to treat the scar tissue. He has had baths every night in his big boy bath and got to go for his first walk around the neighborhood in his stroller!! He is working so hard to wean off his feeding tube! His best day at the hospital consisted of 50 cc's in 24 hours and since coming home (only been home for a week) has worked up to 400-475 cc's per day! Mommy and Daddy are soo proud of our strong fighter that continues to amaze us again and again!! He went to his pediatrician this past monday and the pediatrician couldn't believe his eyes...he never thought Hudson would look as good as he did..he left the room and then preceded to come back in before we left to tell us how fantastic he looks and to keep up the good work....this put a huge smile on mommy's face) Next week Hudson will have another bronchoscopy and then will follow up with all the specialists on a monthly basis to monitor his progess. It is truly amazing what our little boy has been through over the past 4 months. It is such an inspiration to know how brave and strong such a little baby can be and it is such a blessing that we have been chosen to call him our son!!!

Rockstar

Hudson is now 14 weeks old and well over 12 pounds! Hudson had another bronchoscopy last week to reevaluate his airway and the ENT surgeon and cardiothoracic surgeon decided that overall they were pleased with his airway and they wanted to try and treat the remaining granuloma/scar tissue with nebulized steroids and IV steroids and reevaluate in 1-2 weeks. Since the bronchoscopy Hudson has proved once again that he can overcome anything! He weaned completly off all IV meds and escaped ICU this past Monday!!

This week Hudson has made more progress than anyone could have anticipated!! He is off his methadone and diuretics and in the process of weaning valium with no problems...chest xray looks remarkable and he is also tolerating his feeds in his stomach extremely well and is taking a little more from the bottle each and every day!!! As of yesterday..he is completely breathing on his own..NO more oxygen is attached to his littel face!!! Amazing!!! He is holding steady and breathing with ease. Mommy, Daddy and all the family are so very proud of our Hudson...then the surgeons got word of how well he has done this week and they did not believe the news.....the exact words were, "that little boy is a Rockstar!"

The current plan is for Hudson to have his 10th bronchoscopy next Wednesday to look in the airway a final time prior to discharge and address any areas of concern at that time. In the meantime, Hudson is working hard at trying to feed from the bottle, receiving his immunizations and sleeping and pooping! AND....if all goes as planned we should be set free from Children's Medical Center of Dallas late next week...